Raising awareness of Mitchell Syndrome and supporting families and children with this rare neurological disease.
What is Mitchell Syndrome?
Mitchell Syndrome is a newly diagnosed neurological illness caused by a rare genetic mutation, and can result in loss of mobility and motor control, hearing and vision problems, skin rashes, and cognitive deterioration. There is no available cure, but researchers continue to investigate therapeutic treatments. Mitchell Syndrome was named after Mitchell Herndon, the first person to be diagnosed with this genetic condition, and the first identified patient to suffer its fatal effects.
Foundation
The Mitchell and Friends Foundation is a non-profit 501(c)(3) organization dedicated to raising awareness of Mitchell Syndrome and supporting families with children suffering from this illness. We also help families and children with undiagnosed neurological illnesses.
Families
As genetic testing becomes more available and awareness of Mitchell Syndrome grows, more children will be diagnosed with Mitchell Syndrome, and already have been. Each of them have a story to share as they and their families courageously battle this disease.
Contact
If you are a parent with a child recently diagnosed with Mitchell Syndrome, you’ll need support and guidance for the challenges ahead. Please reach out to the Foundation to be connected to other parents and medical professionals who continue to work to identify treatments for this illness.
Give
The Mitchell and Friends Foundation is a non-profit 501(c)(3) organization offering grants, guidance, and grace to families with children battling Mitchell Syndrome, and other undiagnosed childhood neurological diseases. Your tax-deductible donation can go a long way towards helping hurting families.
Advisors
As an organization dedicated to supporting Mitchell Syndrome patients and raising money for effective treatments, The Mitchell and Friends Foundation relies on a team of qualified and distinguished Scientific Advisors for guidance. They are intimately familiar with Mitchell’s story and are experts in this newly diagnosed disease.
Merchandise
Support the cause and raise awareness of Mitchell Syndrome by purchasing official merchandise here.
News and Media
Learn more about Mitchell Syndrome, research, and families from news and media stories.
Trivia Night 2024
We had an immensely successful Trivia Night fundraiser on Sept. 7, 2024. Click here to get the full report.