Mitchell Syndrome families connect in an island paradise.

President Matt Herndon celebrates Rare Disease Day at the Rare Disease Symposium at Washington University

This Thanksgiving, we are thankful for the many caregivers in our community who help care for Mitchell Syndrome patients.

Check out our report from our 2024 Trivia Night Fundraiser.

WashU Lab Tour and Family Conference in St. Louis, Missouri

August 2024 Newsletter: The Lajaunie Lab Tour, Meet Andrea, and a Special Invitation from Matt and Michele Herndon, and their dog

Treatments and Trivia - July 2024 Newsletter

Mitchell and Friends Honored by Hope Happens

Meet Dr. Salena Cui

Rare Disease Week in Washington, D.C.

Why would anyone leave Puerto Rico to visit St. Louis, Missouri, in the dead of winter? Because of the world-class medical care available for Mitchell Syndrome children.

Retrospective Natural History Study of Mitchell Syndrome in Process

$150k fundraising goal reached!

Welcome Dr. Kevin Glinton from Baylor College of Medicine and Texas Children’s Hospital to our Scientific Advisory Team.

Happy Halloween from The Mitchell and Friends Foundation!

Four years after Mitchell Herndon’s passing on Oct. 2, 2019, we are honored and grateful to be able to continue to support the Miller Lab and their efforts to understand Mitchell Syndrome, and identify a cure.

VP Michele Herndon Pursuing New Opportunities with Old Friends at the UDNF

The First Ever Mitchell Syndrome Summit was held on June 1-2 at Houston Methodist Hospital in Texas.

In this month’s newsletter, we share a fundraising update and exciting developments on the research front as we seek to find a cure for Mitchell Syndrome.