The Mitchell and Friends Foundation - Feb. 2024 Newsletter

Dear Friends…

Kristen and Auggie Morar left the tropical climes of Puerto Rico to brave the frigid sub-zero temps of St. Louis last month. Why? Because despite the schizophrenic weather, St. Louis is host to some of the world's leading experts on Mitchell Syndrome at Washington University and the BJC Medical Group.

Auggie is the youngest known patient with Mitchell Syndrome--and arguably, the cutest. He flirted his way through a neuro exam with Dr. Renatta Knox, a Wash U pediatric neurologist and invaluable resource for Mitchell Syndrome families. Mitchell and Friends Scientific Advisor (and Mitchell Herndon's adult neurologist) Dr. Robert Bucelli also popped in to get an update--along with neurology resident Dr. Salena Cui. They discussed Auggie's current treatments and his improving condition. And while here, the Herndon family got to play host. Vice-President Michele dug out some old toys, and we made sure to treat Kristen to some of St. Louis' finest fare: toasted ravioli.

As we continue to raise awareness of Mitchell Syndrome and pursue our 2024 fundraising goal of $120,000 for research into treatments and support of families, we are increasingly grateful for the resources we have here in the “the gateway to the Midwest.” STL can't compete with the warm temps of Puerto Rico, but with compassionate doctors, good friends, and fried ravioli, what's not to like?

To stay up to date on our progress and Foundation goings-on, visit mitchellandfriends.org. Together we can defeat the rarest of rare diseases.

Sincerely,

Matt and Michele Herndon with The Mitchell and Friends Foundation