Mitchell Syndrome Meet-Up

As the number of children diagnosed with Mitchell Syndrome slowly grows, we want the M&F Foundation to be a place where parents and caregivers can connect with each other in a group setting—for support and advice. This past Tuesday night—and for the first time ever—that happened.

For nearly 90 minutes parents and caregivers from around the country got to know each other over Google Meet. We introduced ourselves, and our kiddos. Michele gave an update of the Foundation and told about some of the new families we’ve connected with from different parts of the world. Parents also shared tips on how to cope with hearing loss and other symptoms of Mitchell Syndrome. We’re still learning how this disease works. As we could tell from the conversation, everybody’s experience is different.

It was the first of many meetings we look forward to having with parents and caregivers. Over our long journey, we never had the chance to talk with people who could really, truly empathize with what we were experiencing. (Mitchell didn’t, either.) It is a sad joy to know that because of Mitchell’s sacrifice, parents—and hopefully, children—can connect with other people who can understand what they’re dealing with in a way that nobody else can.

Mitchell Syndrome can be a hard road, but at least now parents and children can know they are not alone as they push forward in hope and faith.

-Matt Herndon (4/1/2022)

To receive future Foundation updates, please subscribe to our newsletter.