Remembering Henry

We were sad to hear of Henry's passing from Mitchell Syndrome earlier this week. Henry lived a heroic seven years as he battled a mysterious illness he did not ask to have. We connected with Henry's family, who lives in the UK, through social media. Though we never met this young boy, we found courage in his red cheeks, dark eyes, Harry-Potter glasses, and never-ending smile. Please remember Henry's family in your prayers as they continue a lifelong journey of love and remembrance. And remember the unknown number of Mitchell Syndrome people out there--kids and adults, all around the world--who still need our help. Visit our GIVE and RESEARCH pages to learn how you can help us defeat the rarest of rare diseases.