What is St. Louis but a gateway through which new connections can be made? It was a joy meeting a fellow Mitchell Syndrome family, all the way from Russia.

Anyone who has lost a loved one knows that holidays are the worst. There's always an empty space at the table or a stocking left on the wall--or a holiday photo from years past--to trigger your grief.

Our First! Ever! Mitchell and Friends Trivia Night was a team effort, a ton of fun, and an all around success.

Thanks to your generosity, The Mitchell and Friends Foundation has reached the first leg of its $150,000 race.

Meet the doctors and scientists who were key in helping identify Mitchell Syndrome and continue to fight for greater awareness and possible treatments.

Michele Herndon, Vice-President of The Mitchell and Friends Foundation, attends the World Orphan Drug Congress USA and a meeting of the Undiagnosed Diseases Network in Boston.

Remembering Henry, who passed away from Mitchell Syndrome on June 6, 2022.

In a recent Senate Appropriations Hearing, Senator Roy Blunt from Missouri challenges the National Institutes of Health to maintain funding for the Undiagnosed Diseases Network (UDN). As an example of the good work being done at the UDN, he shares the story of Mitchell Herndon, diagnosed with Mitchell Syndrome at the UDN site at Baylor in 2017.

Matt and Michele Herndon, Founders of The Mitchell and Friends Foundation, announce a new research partnership with Washington University School of Medicine.

As the number of children diagnosed with Mitchell Syndrome slowly grows, we want the M&F Foundation to be a place where parents and caregivers can connect with each other in a group setting—for support and advice. This past Tuesday night—and for the first time ever—that happened.

As we add new friends to the Mitchell and Friends network, we’re also learning more about the Syndrome these families are battling.

And the first Mitchell and Friends grant goes to…

Good news to share from the M&F Foundation’s first week…

The inaugural meeting of The Mitchell and Friends Foundation included old friends, a big vision, and fresh cookies.